Monday, June 7, 2010

NJ Senate Bill S2038- Jaden's Law

Today was a historical day. We spoke to the Senate about adopting Jaden's Law in New Jersey. Jaden's Parents, his grandfather and myself spoke to the Senate about the need to establish bill. "We do not want another family to experience a loss such as ours, this bill will eliminate other Jaden's from dying," says Rodney Hilton. This was an extremely emotional day.

Jaden's Law will embark on records of increase within the National Registry. This bill is the first bill in American that encourages doctors to inform patients about their bone marrow donor options with an online brochure that answers common questions as well as explains the procedure.

I Thank GOD for this!!!
Shana Melius, Co-Founder Preserve Our Legacy, Inc.

Friday, June 4, 2010

NJ BILL 2168- JADEN'S LAW

AN ACT concerning bone marrow donation 1 and designated as
Jaden’s Law, and supplementing Titles 26 and 45 of the Revised
Statutes.

BE IT ENACTED by the Senate and General Assembly of the State
of New Jersey:

1. a. The Commissioner of Health and Senior Services shall
prepare an online brochure for display on the Internet website of the
Department of Health and Senior Services, based upon information
derived from the National Marrow Donor Program, or NMDP,
which may be downloaded by physicians for the purposes of section
2 of P.L. , c. (C. )(pending before the Legislature as this act),
and shall be designed to inform patients of the option to become a
bone marrow or peripheral blood stem cell, or PBSC, donor by
registering with the NMDP and to answer common questions about
bone marrow and peripheral blood stem cell, or PBSC, donation.
b. The brochure shall describe:
(1) the health benefits to the community from making a bone
marrow or PBSC donation through the NMDP;
(2) how to register with the NMDP;
(3) the procedures for making a bone marrow or PBSC donation
through the NMDP, including notice that there is no charge to the
donor or the donor’s family for making the donation;
(4) the circumstances and procedures by which a patient may
receive a transfusion of the patient’s previously donated blood; and
(5) any other aspects of bone marrow or PBSC donation that the
commissioner deems appropriate for the purposes of this act.

2. a. A physician, as early as practicable in the physician’s
therapeutic relationship with a patient and unless the physician
reasonably believes that bone marrow or peripheral blood stem cell,
or PBSC, donation would threaten the health of the patient, shall
provide a copy of the brochure prepared by the Commissioner of
Health and Senior Services pursuant to section 1 of
P.L. , c. (C. )(pending before the Legislature as this act) to
every patient:
(1) who is known by the physician to be at least 18 years of age
but no older than 60 years of age; and
(2) who the physician anticipates will be admitted to a hospital
for an elective orthopedic procedure or treatment or otherwise
believes is an appropriate candidate for bone marrow or PBSC
donation; or for whom the physician otherwise believes bone
marrow or PBSC donation is appropriate to the patient’s medical
circumstances or is desired by the patient.
The physician shall offer to discuss the information contained in
the brochure with the patient.
b. The provisions of subsection a. of this section shall not be

construed to apply to a physician who is directly 1 affiliated with a
religious denomination that adheres to the tenet that bone marrow
or PBSC transfer is contrary to the moral principles which the
denomination considers to be an essential part of its beliefs and
practices.

3. This act shall take effect on the 90th day following
enactment.


STATEMENT


This bill, which is designated as Jaden’s Law, is designed to
promote awareness among patients of their option to become bone
marrow and peripheral blood stem cell (PBSC) donors.

The bill provides specifically as follows:

• The Commissioner of Health and Senior Services is to prepare an
online brochure for display on the Internet website of the
Department of Health and Senior Services, based upon
information derived from the National Marrow Donor Program,
or NMDP, which may be downloaded by physicians for the
purposes of this bill, and is to be designed to inform patients of
the option to become a bone marrow or peripheral blood stem
cell, or PBSC, donor by registering with the NMDP and to answer
common questions about bone marrow and peripheral blood stem
cell, or PBSC, donation.

• The brochure is to describe:
-- the health benefits to the community from making a bone
marrow or PBSC donation through the NMDP;
-- how to register with the NMDP;
-- the procedures for making a bone marrow or PBSC donation
through the NMDP, including notice that there is no charge to the
donor or the donor’s family for making the donation;
-- the circumstances and procedures by which a patient may
receive a transfusion of the patient’s previously donated blood; and
-- any other aspects of bone marrow or PBSC donation that the
commissioner deems appropriate for the purposes of the bill.

• A physician, as early as practicable in the physician’s therapeutic
relationship with a patient and unless the physician reasonably
believes that bone marrow or PBSC donation would threaten the
health of the patient, is directed to provide a copy of the brochure
prepared by the Commissioner of Health and Senior Services
pursuant to this bill to every patient:
-- who is known by the physician to be at least 18 years of age
but no older than 60 years of age; and
-- who the physician anticipates will be admitted to a hospital
for an elective orthopedic procedure or treatment or otherwise
believes is an appropriate candidate for bone marrow or PBSC

donation; or for whom the physician otherwise 1 believes bone
marrow or PBSC donation is appropriate to the patient’s medical
circumstances or is desired by the patient.

• The physician is further directed to offer to discuss the
information contained in the brochure with the patient.

• The provisions of this bill are not to be construed to apply to a
physician who is directly affiliated with a religious denomination
that adheres to the tenet that bone marrow or PBSC transfer is
contrary to the moral principles which the denomination
considers to be an essential part of its beliefs and practices.
• The bill takes effect on the 90th day following enactment

JUNE IS STEM CELL MONTH....STEM CELL FACT OF TODAY

WOW and Thank you GOD! Is really all I can say. I mean we have had so much progress in such a short time. The only person we really can thank is GOD. First thing first...JADEN'S LAW passed in the New Jersey Assembly. We are presently working on the Senate side. This will be introduced by Senator Teresa Ruiz. We are working on getting Jaden's Law established, therefore, some of our events will be postponed. Our Atlanta, GA date has moved to September 25, 2010.

Throughout this month we will be providing you stem cell facts:

Stem Cell Fact #1
What are Stem Cells?

They are cells that can develop into many different cell types in the body. They also are considered as an internal repair system of the body's healing mechanism, considering, they divide without limit to replenish other cells as long as the living organism is alive.