Preserve Our Legacy will be hosting a bone marrow drive for 15 year old Taylor John! Taylor is battling sickle cell anemia. Did you know that stem cells can cure sickle cell anemia?!?
Stay tuned for the updates!!!
#jadenslaw #bethematch #P.O.L.didyouknow
Sunday, August 15, 2010
Harlem week 2010
Today is the Health Fair during Harlem Week. My husband, Brett and I attended yesterday. There are atleast 2 million people that attend each year. We spoke to various people. Many read the story about Jaden. On January 29, 2007, We made a promise, to Rodney and his wife Sharifah, that NO family will ever have to go through this! Today, Tiffani Hilton, My husband and myself will attend and host another bone marrow drive for the NMDP! Each donor drive we get closer to saving someone's life and registering more people. The way I look at, if we add more individuals, especially minorities, to the registry the more likely someone will find a donor match! That next registeree could #bethematch for someone!
#jadenslaw worldwide!!!
#jadenslaw worldwide!!!
Tuesday, July 27, 2010
ASSEMBLYMAN KEITH L. WRIGHT TO REGISTER BONE MARROW DONORS FOR 11-YEAR OLD SHANNON TAVAREZ
FOR IMMEDIATE RELEASE:
Shana Melius
Preserve Our Legacy, Inc
P: 877.778.3623 ext 702
F: 718.425.8983
shana.melius@preserveourlegacy.org
ASSEMBLYMAN KEITH L. WRIGHT
TO REGISTER BONE MARROW DONORS
FOR
11-YEAR OLD SHANNON TAVAREZ
AT HARLEM CHILDREN’S ZONE
JULY 31, 2010
New York, N.Y.-(July 27, 2010)- It was announced today that Assemblyman Keith L. Wright will assist Preserve Our Legacy, Inc. and Icla Da Silva Foundation in registering bone marrow donors at Harlem Children’s Zone on July 31, 2010, from 12:00 pm-5:00 pm.
Shannon Tavarez
11-year old Shannon Tavarez, who was performing as Young Nala in “The Lion King on Broadway”, was diagnosed with AML Leukemia and is fighting her cancer with daily chemo treatments. She is in need of a life-saving bone marrow donor drive. Shannon is Dominican and African-American. Therefore, it will be harder for her to find a donor. Presently, Hispanics represent 9%, African-Americans represent 8%, while Caucasians represent close to 80% of the National Registry.
Icla da Silva Foundation
The Icla da Silva Foundation, a nonprofit organization under section 501(c) 3 of the IRS Code, was established in June of 1992 after the death of Icla da Silva, a thirteen-year-old Brazilian girl who had leukemia. She died after intense efforts by her family, friends and neighbors to find a matching donor.
The mission of the Icla da Silva Foundation is to save lives by recruiting bone marrow donors and by providing support services to children and adults with leukemia and other diseases treatable by marrow transplants. Icla da Silva is the largest Recruitment Center for the Be The Match Registry.
Preserve Our Legacy, Inc.
P.O.L’s mission is to educate minorities about the benefits of stem cells and treatment options they provide for health disparities. In 2006, the founders of MMA, Brett and Shana Melius met then 2-year old Jaden Hilton. At the time, Jaden was battling Leukemia, which inspired MMA to begin working with DKMS to find a donor for Jaden. Despite their efforts, Jaden lost his battle with Leukemia on January 29, 2007. After this devastating loss, MMA, Inc. heightened its efforts to build awareness especially amongst minorities about the need for those who are affected by leukemia, sickle cell anemia, heart disease, diabetes and other diseases at higher rates throughout the US. In an effort to fulfill the mission of educating minorities, Jaden’s Law was formed. P.O.L partners with various organizations to increase awareness within the community.
Jaden’s Law
This bill, which is designated as Jaden’s Law, is designed to promote awareness among patients of their option to become bone marrow and peripheral blood stem cell (PBSC) donors. This bill will help increase awareness within the minority community to increase the numbers within the National Registry.
Jaden’s Law passed on the New Jersey Assembly on May 20, 2010 and on the New Jersey Senate on June 10, 2010. New York Assemblyman Keith L. Wright introduced Jaden’s Law in New York in July 2010. http://assembly.state.ny.us/leg/?bn=A11610.
Donor Drive
Location: Harlem Children Zone, 35 E 125th St, Cafeteria, NY, NY 10035
Date: July 31, 2010
Time: 12:00 PM-5:00 PM
Donation: Just a swab on both cheeks, complete in 3 minutes
Celebrities that registered as bone marrow donors:
http://www.thisis50.com/profiles/blogs/50-cent-and-tony-yayo-register
For more interviews or information about P.O.L contact Shana Melius at 877.778.3623 ext 702 or log on to www.preserveourlegacy.org. For more information about Icla da Silva contact Airam da Silva at 888.638.2870 or www.icla.org.
###
Shana Melius
Preserve Our Legacy, Inc
P: 877.778.3623 ext 702
F: 718.425.8983
shana.melius@preserveourlegacy.org
ASSEMBLYMAN KEITH L. WRIGHT
TO REGISTER BONE MARROW DONORS
FOR
11-YEAR OLD SHANNON TAVAREZ
AT HARLEM CHILDREN’S ZONE
JULY 31, 2010
New York, N.Y.-(July 27, 2010)- It was announced today that Assemblyman Keith L. Wright will assist Preserve Our Legacy, Inc. and Icla Da Silva Foundation in registering bone marrow donors at Harlem Children’s Zone on July 31, 2010, from 12:00 pm-5:00 pm.
Shannon Tavarez
11-year old Shannon Tavarez, who was performing as Young Nala in “The Lion King on Broadway”, was diagnosed with AML Leukemia and is fighting her cancer with daily chemo treatments. She is in need of a life-saving bone marrow donor drive. Shannon is Dominican and African-American. Therefore, it will be harder for her to find a donor. Presently, Hispanics represent 9%, African-Americans represent 8%, while Caucasians represent close to 80% of the National Registry.
Icla da Silva Foundation
The Icla da Silva Foundation, a nonprofit organization under section 501(c) 3 of the IRS Code, was established in June of 1992 after the death of Icla da Silva, a thirteen-year-old Brazilian girl who had leukemia. She died after intense efforts by her family, friends and neighbors to find a matching donor.
The mission of the Icla da Silva Foundation is to save lives by recruiting bone marrow donors and by providing support services to children and adults with leukemia and other diseases treatable by marrow transplants. Icla da Silva is the largest Recruitment Center for the Be The Match Registry.
Preserve Our Legacy, Inc.
P.O.L’s mission is to educate minorities about the benefits of stem cells and treatment options they provide for health disparities. In 2006, the founders of MMA, Brett and Shana Melius met then 2-year old Jaden Hilton. At the time, Jaden was battling Leukemia, which inspired MMA to begin working with DKMS to find a donor for Jaden. Despite their efforts, Jaden lost his battle with Leukemia on January 29, 2007. After this devastating loss, MMA, Inc. heightened its efforts to build awareness especially amongst minorities about the need for those who are affected by leukemia, sickle cell anemia, heart disease, diabetes and other diseases at higher rates throughout the US. In an effort to fulfill the mission of educating minorities, Jaden’s Law was formed. P.O.L partners with various organizations to increase awareness within the community.
Jaden’s Law
This bill, which is designated as Jaden’s Law, is designed to promote awareness among patients of their option to become bone marrow and peripheral blood stem cell (PBSC) donors. This bill will help increase awareness within the minority community to increase the numbers within the National Registry.
Jaden’s Law passed on the New Jersey Assembly on May 20, 2010 and on the New Jersey Senate on June 10, 2010. New York Assemblyman Keith L. Wright introduced Jaden’s Law in New York in July 2010. http://assembly.state.ny.us/leg/?bn=A11610.
Donor Drive
Location: Harlem Children Zone, 35 E 125th St, Cafeteria, NY, NY 10035
Date: July 31, 2010
Time: 12:00 PM-5:00 PM
Donation: Just a swab on both cheeks, complete in 3 minutes
Celebrities that registered as bone marrow donors:
http://www.thisis50.com/profiles/blogs/50-cent-and-tony-yayo-register
For more interviews or information about P.O.L contact Shana Melius at 877.778.3623 ext 702 or log on to www.preserveourlegacy.org. For more information about Icla da Silva contact Airam da Silva at 888.638.2870 or www.icla.org.
###
Friday, July 23, 2010
P.O.L & ICLA DA SILVA FOUNDTION TO HOST BONE MARROW DRIVE FOR SHANNON TAVAREZ at HARLEM CHILDREN'S ZONE ON JULY 31, 2010
Our organization started after the devastating lost of our friends, 3-year old son, Jaden Hilton (photo enclosed in presentation). Jaden was diagnosed with leukemia in April of 2006, in which he needed a bone marrow transplant. Unfortunately for Jaden, his parents and his brother were not a match, nor was anyone in his family. We needed to find Jaden an unrelated donor. In 2006, African-Americans only represented 4% of the registry. Presently, Hispanics represent 9%, African-Americans represent 8%, Asians represent 7%, while Caucasians represent more than 70% of the NMDP/Be The Match Registry. Because we could not find him a match, Jaden lost his battle to leukemia on January 29, 2007. After his death, we made it our life's mission to educate minority about the benefits of stem cells and treatment options they provide through peripheral blood stem cells, bone marrow and umbilical cord blood donation. We have also established legislation in New Jersey. It is New Jersey Bill A2168/S2038- Jaden's Law. Our bill has also been introduced by Assemblyman Keith L. Wright in New York in July 2010. It is New York A11610- Jaden's Law. Our goal is to have NYA11610-Jaden's Law passed in 2011, considering that the sessions ended the day of our bills introduction. We are also in the works with Congressman Charles Rangel to establish throughout the nation, Jaden's Law, as a federal bill. I have enclosed a presentation about Preserve Our Legacy, Inc. We are also launching the P.O.L. Umbilical cord blood program at Harlem Hospital OB/GYN Clinic in September 2010, which is led by Dr. Edgar Mandeville, Director of OB/GYN. This program will increase umbilical cord blood donation within the minority community, ultimately, increase the percentages in the National Registry.
Shannon is only 11 years old and she is fighting for her life. She was recently diagnosed with leukemia, and needs a marrow transplant from a 100% Match in order to survive.
Unfortunately, Shannon and many other patients like her are still searching for their life saving matches. Shannon has the best chance of finding a match within her Dominican and African American heritage.
You can also register online: http://join.marrow.org/Shannon or they can go to BeTheMatch.org and use Promo Code: Shannon
#jadenslaw
Shannon is only 11 years old and she is fighting for her life. She was recently diagnosed with leukemia, and needs a marrow transplant from a 100% Match in order to survive.
Unfortunately, Shannon and many other patients like her are still searching for their life saving matches. Shannon has the best chance of finding a match within her Dominican and African American heritage.
You can also register online: http://join.marrow.org/Shannon or they can go to BeTheMatch.org and use Promo Code: Shannon
#jadenslaw
Monday, June 7, 2010
NJ Senate Bill S2038- Jaden's Law
Today was a historical day. We spoke to the Senate about adopting Jaden's Law in New Jersey. Jaden's Parents, his grandfather and myself spoke to the Senate about the need to establish bill. "We do not want another family to experience a loss such as ours, this bill will eliminate other Jaden's from dying," says Rodney Hilton. This was an extremely emotional day.
Jaden's Law will embark on records of increase within the National Registry. This bill is the first bill in American that encourages doctors to inform patients about their bone marrow donor options with an online brochure that answers common questions as well as explains the procedure.
I Thank GOD for this!!!
Shana Melius, Co-Founder Preserve Our Legacy, Inc.
Jaden's Law will embark on records of increase within the National Registry. This bill is the first bill in American that encourages doctors to inform patients about their bone marrow donor options with an online brochure that answers common questions as well as explains the procedure.
I Thank GOD for this!!!
Shana Melius, Co-Founder Preserve Our Legacy, Inc.
Friday, June 4, 2010
NJ BILL 2168- JADEN'S LAW
AN ACT concerning bone marrow donation 1 and designated as
Jaden’s Law, and supplementing Titles 26 and 45 of the Revised
Statutes.
BE IT ENACTED by the Senate and General Assembly of the State
of New Jersey:
1. a. The Commissioner of Health and Senior Services shall
prepare an online brochure for display on the Internet website of the
Department of Health and Senior Services, based upon information
derived from the National Marrow Donor Program, or NMDP,
which may be downloaded by physicians for the purposes of section
2 of P.L. , c. (C. )(pending before the Legislature as this act),
and shall be designed to inform patients of the option to become a
bone marrow or peripheral blood stem cell, or PBSC, donor by
registering with the NMDP and to answer common questions about
bone marrow and peripheral blood stem cell, or PBSC, donation.
b. The brochure shall describe:
(1) the health benefits to the community from making a bone
marrow or PBSC donation through the NMDP;
(2) how to register with the NMDP;
(3) the procedures for making a bone marrow or PBSC donation
through the NMDP, including notice that there is no charge to the
donor or the donor’s family for making the donation;
(4) the circumstances and procedures by which a patient may
receive a transfusion of the patient’s previously donated blood; and
(5) any other aspects of bone marrow or PBSC donation that the
commissioner deems appropriate for the purposes of this act.
2. a. A physician, as early as practicable in the physician’s
therapeutic relationship with a patient and unless the physician
reasonably believes that bone marrow or peripheral blood stem cell,
or PBSC, donation would threaten the health of the patient, shall
provide a copy of the brochure prepared by the Commissioner of
Health and Senior Services pursuant to section 1 of
P.L. , c. (C. )(pending before the Legislature as this act) to
every patient:
(1) who is known by the physician to be at least 18 years of age
but no older than 60 years of age; and
(2) who the physician anticipates will be admitted to a hospital
for an elective orthopedic procedure or treatment or otherwise
believes is an appropriate candidate for bone marrow or PBSC
donation; or for whom the physician otherwise believes bone
marrow or PBSC donation is appropriate to the patient’s medical
circumstances or is desired by the patient.
The physician shall offer to discuss the information contained in
the brochure with the patient.
b. The provisions of subsection a. of this section shall not be
construed to apply to a physician who is directly 1 affiliated with a
religious denomination that adheres to the tenet that bone marrow
or PBSC transfer is contrary to the moral principles which the
denomination considers to be an essential part of its beliefs and
practices.
3. This act shall take effect on the 90th day following
enactment.
STATEMENT
This bill, which is designated as Jaden’s Law, is designed to
promote awareness among patients of their option to become bone
marrow and peripheral blood stem cell (PBSC) donors.
The bill provides specifically as follows:
• The Commissioner of Health and Senior Services is to prepare an
online brochure for display on the Internet website of the
Department of Health and Senior Services, based upon
information derived from the National Marrow Donor Program,
or NMDP, which may be downloaded by physicians for the
purposes of this bill, and is to be designed to inform patients of
the option to become a bone marrow or peripheral blood stem
cell, or PBSC, donor by registering with the NMDP and to answer
common questions about bone marrow and peripheral blood stem
cell, or PBSC, donation.
• The brochure is to describe:
-- the health benefits to the community from making a bone
marrow or PBSC donation through the NMDP;
-- how to register with the NMDP;
-- the procedures for making a bone marrow or PBSC donation
through the NMDP, including notice that there is no charge to the
donor or the donor’s family for making the donation;
-- the circumstances and procedures by which a patient may
receive a transfusion of the patient’s previously donated blood; and
-- any other aspects of bone marrow or PBSC donation that the
commissioner deems appropriate for the purposes of the bill.
• A physician, as early as practicable in the physician’s therapeutic
relationship with a patient and unless the physician reasonably
believes that bone marrow or PBSC donation would threaten the
health of the patient, is directed to provide a copy of the brochure
prepared by the Commissioner of Health and Senior Services
pursuant to this bill to every patient:
-- who is known by the physician to be at least 18 years of age
but no older than 60 years of age; and
-- who the physician anticipates will be admitted to a hospital
for an elective orthopedic procedure or treatment or otherwise
believes is an appropriate candidate for bone marrow or PBSC
donation; or for whom the physician otherwise 1 believes bone
marrow or PBSC donation is appropriate to the patient’s medical
circumstances or is desired by the patient.
• The physician is further directed to offer to discuss the
information contained in the brochure with the patient.
• The provisions of this bill are not to be construed to apply to a
physician who is directly affiliated with a religious denomination
that adheres to the tenet that bone marrow or PBSC transfer is
contrary to the moral principles which the denomination
considers to be an essential part of its beliefs and practices.
• The bill takes effect on the 90th day following enactment
Jaden’s Law, and supplementing Titles 26 and 45 of the Revised
Statutes.
BE IT ENACTED by the Senate and General Assembly of the State
of New Jersey:
1. a. The Commissioner of Health and Senior Services shall
prepare an online brochure for display on the Internet website of the
Department of Health and Senior Services, based upon information
derived from the National Marrow Donor Program, or NMDP,
which may be downloaded by physicians for the purposes of section
2 of P.L. , c. (C. )(pending before the Legislature as this act),
and shall be designed to inform patients of the option to become a
bone marrow or peripheral blood stem cell, or PBSC, donor by
registering with the NMDP and to answer common questions about
bone marrow and peripheral blood stem cell, or PBSC, donation.
b. The brochure shall describe:
(1) the health benefits to the community from making a bone
marrow or PBSC donation through the NMDP;
(2) how to register with the NMDP;
(3) the procedures for making a bone marrow or PBSC donation
through the NMDP, including notice that there is no charge to the
donor or the donor’s family for making the donation;
(4) the circumstances and procedures by which a patient may
receive a transfusion of the patient’s previously donated blood; and
(5) any other aspects of bone marrow or PBSC donation that the
commissioner deems appropriate for the purposes of this act.
2. a. A physician, as early as practicable in the physician’s
therapeutic relationship with a patient and unless the physician
reasonably believes that bone marrow or peripheral blood stem cell,
or PBSC, donation would threaten the health of the patient, shall
provide a copy of the brochure prepared by the Commissioner of
Health and Senior Services pursuant to section 1 of
P.L. , c. (C. )(pending before the Legislature as this act) to
every patient:
(1) who is known by the physician to be at least 18 years of age
but no older than 60 years of age; and
(2) who the physician anticipates will be admitted to a hospital
for an elective orthopedic procedure or treatment or otherwise
believes is an appropriate candidate for bone marrow or PBSC
donation; or for whom the physician otherwise believes bone
marrow or PBSC donation is appropriate to the patient’s medical
circumstances or is desired by the patient.
The physician shall offer to discuss the information contained in
the brochure with the patient.
b. The provisions of subsection a. of this section shall not be
construed to apply to a physician who is directly 1 affiliated with a
religious denomination that adheres to the tenet that bone marrow
or PBSC transfer is contrary to the moral principles which the
denomination considers to be an essential part of its beliefs and
practices.
3. This act shall take effect on the 90th day following
enactment.
STATEMENT
This bill, which is designated as Jaden’s Law, is designed to
promote awareness among patients of their option to become bone
marrow and peripheral blood stem cell (PBSC) donors.
The bill provides specifically as follows:
• The Commissioner of Health and Senior Services is to prepare an
online brochure for display on the Internet website of the
Department of Health and Senior Services, based upon
information derived from the National Marrow Donor Program,
or NMDP, which may be downloaded by physicians for the
purposes of this bill, and is to be designed to inform patients of
the option to become a bone marrow or peripheral blood stem
cell, or PBSC, donor by registering with the NMDP and to answer
common questions about bone marrow and peripheral blood stem
cell, or PBSC, donation.
• The brochure is to describe:
-- the health benefits to the community from making a bone
marrow or PBSC donation through the NMDP;
-- how to register with the NMDP;
-- the procedures for making a bone marrow or PBSC donation
through the NMDP, including notice that there is no charge to the
donor or the donor’s family for making the donation;
-- the circumstances and procedures by which a patient may
receive a transfusion of the patient’s previously donated blood; and
-- any other aspects of bone marrow or PBSC donation that the
commissioner deems appropriate for the purposes of the bill.
• A physician, as early as practicable in the physician’s therapeutic
relationship with a patient and unless the physician reasonably
believes that bone marrow or PBSC donation would threaten the
health of the patient, is directed to provide a copy of the brochure
prepared by the Commissioner of Health and Senior Services
pursuant to this bill to every patient:
-- who is known by the physician to be at least 18 years of age
but no older than 60 years of age; and
-- who the physician anticipates will be admitted to a hospital
for an elective orthopedic procedure or treatment or otherwise
believes is an appropriate candidate for bone marrow or PBSC
donation; or for whom the physician otherwise 1 believes bone
marrow or PBSC donation is appropriate to the patient’s medical
circumstances or is desired by the patient.
• The physician is further directed to offer to discuss the
information contained in the brochure with the patient.
• The provisions of this bill are not to be construed to apply to a
physician who is directly affiliated with a religious denomination
that adheres to the tenet that bone marrow or PBSC transfer is
contrary to the moral principles which the denomination
considers to be an essential part of its beliefs and practices.
• The bill takes effect on the 90th day following enactment
JUNE IS STEM CELL MONTH....STEM CELL FACT OF TODAY
WOW and Thank you GOD! Is really all I can say. I mean we have had so much progress in such a short time. The only person we really can thank is GOD. First thing first...JADEN'S LAW passed in the New Jersey Assembly. We are presently working on the Senate side. This will be introduced by Senator Teresa Ruiz. We are working on getting Jaden's Law established, therefore, some of our events will be postponed. Our Atlanta, GA date has moved to September 25, 2010.
Throughout this month we will be providing you stem cell facts:
Stem Cell Fact #1
What are Stem Cells?
They are cells that can develop into many different cell types in the body. They also are considered as an internal repair system of the body's healing mechanism, considering, they divide without limit to replenish other cells as long as the living organism is alive.
Throughout this month we will be providing you stem cell facts:
Stem Cell Fact #1
What are Stem Cells?
They are cells that can develop into many different cell types in the body. They also are considered as an internal repair system of the body's healing mechanism, considering, they divide without limit to replenish other cells as long as the living organism is alive.
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